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Severe ME/CFS Webinar Series Session 3: Medical Panel

Bateman Horne Center

14.5K subscribers

764 views 2 months ago

Solve M.E. and Bateman Horne Center co-hosted this webinar series for the benefit of patients and caregivers navigating life with severe ME/CFS. The third installment in the series focused on the challenges faced by both patients and clinicians, offering insights into strategies, systemic needs, and potential solutions for improving care accessibility. IMPORTANT LINKS Resource Guide: https://batemanhornecenter.org/wp-con... Slide Deck: https://batemanhornecenter.org/wp-con... Transcript: https://batemanhornecenter.org/wp-con... TIME STAMPS 00:00 Introduction 01:25 Defining severe ME/CFS 03:30 Adapting the clinical approach for severe ME/CFS 12:20 Addressing barriers in severe ME/CFS patient care such as ER visits and procedures 18:34 Ensuring severe ME/CFS patients are treated with dignity and respect 21:15 Approach to working with caregivers and supporting patients without caregivers 29:15 Approach to pediatric patients with severe ME/CFS 34

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Introduction

Defining severe ME/CFS

Adapting the clinical approach for severe ME/CFS

Addressing barriers in severe ME/CFS patient care such as ER visits and procedures

Ensuring severe ME/CFS patients are treated with dignity and respect

Approach to working with caregivers and supporting patients without caregivers

Approach to pediatric patients with severe ME/CFS

Systemic healthcare changes needed to address severe ME/CFS

Pacing to prevent severe ME/CFS and pacing for severe ME/CFS

Severe ME/CFS Webinar Series Session 3: Medical Panel

56Likes

764Views

Jan 82025

Solve M.E. and Bateman Horne Center co-hosted this webinar series for the benefit of patients and caregivers navigating life with severe ME/CFS. The third installment in the series focused on the challenges faced by both patients and clinicians, offering insights into strategies, systemic needs, and potential solutions for improving care accessibility. IMPORTANT LINKS Resource Guide: https://batemanhornecenter.org/wp-con... Slide Deck: https://batemanhornecenter.org/wp-con... Transcript: https://batemanhornecenter.org/wp-con... TIME STAMPS 00:00 Introduction 01:25 Defining severe ME/CFS 03:30 Adapting the clinical approach for severe ME/CFS 12:20 Addressing barriers in severe ME/CFS patient care such as ER visits and procedures 18:34 Ensuring severe ME/CFS patients are treated with dignity and respect 21:15 Approach to working with caregivers and supporting patients without caregivers 29:15 Approach to pediatric patients with severe ME/CFS 34:00 Systemic healthcare changes needed to address severe ME/CFS 38:04 Pacing to prevent severe ME/CFS and pacing for severe ME/CFS The content provided by Solve M.E. and the Bateman Horne Center in this video is for informational purposes only and does not constitute medical advice. Viewers are encouraged to consult with medical professionals for specific advice tailored to their individual circumstances.

Transcript

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Bateman Horne Center

14.5K subscribers